“I WILL NOT HIDE” Hidradenitis Suppurativa (HS) Patient Personal Stories

The new Book program soon to roll out soon, more info coming. Let us know if you would like your story available on Amazon for ‪#‎HSAWARENESS‬ fundraising. The hard cover glossy books will print and ship on demand directly from Amazon. Our cost per title will be between $4 – $6, to be listed at around $10 – $14.

Everyone has the opportunity to publish their story within the Organization. Although we all share the same orphan disease, each story can be different and unique. Learning about other existing co-morbidities associated with HS/AI can lead to proper treatment for patients that do not have awareness or are currently at risk.

Obtaining knowledge of how others handle their pain can be useful – the mental health implications for all patients are the most debilitating aspects of this chronic disease. Online publishing on AMAZON is a focus. Our self publishing book project, with your contribution, will be available in libraries, schools, book stores, online vendors and homes. The endless series and collection of patient stories will foster general awareness for a disease, and sales will directly benefit awareness programs such as these.

Please consider sharing this special project: “I WILL NOT HIDE” #HidradenitisSuppurativa (HS) Patient Stories #iwillnotHIDE #HSAWARENESS http://sumo.ly/m3hv


I WILL NOT HIDE Hidradenitis Suppurativa Patient Stories

Hidradenitis Suppurativa “#iwillnotHIDE” Patient Personal Stories Published Online and In Print

Everyone has the opportunity to publish their story within the Organization. Although we all share the same orphan disease, each story can be different and unique. Learning about other existing comorbidities associated with Hidradenitis Suppurativa can lead to proper treatment for patients that do not have awareness or are currently at risk.  Obtaining knowledge of how others cope can be useful – the mental health implications for all patients is also a debilitating aspect for this potentially life long chronic disease.

PUBLISHING ONLINE:

By design and to make sure there is NO BARRIER to #HSAWARENESS for patients new to this disease and old ALL stories are published online first at HSSUPPORT.ORG.

PUBLISHING IN PRINT:

Our self publishing book program with patient contributions is available in libraries, schools, book stores, online vendors and homes. The endless series and collection of patient stories will foster general awareness for Hidradenitis Suppurativa and sales will directly benefit awareness programs such as these.

On HSSUPPORT.ORG ($12.99):
 
On AMAZON ($14.99):
1 Comment
  1. Profile photo of Shavaughn Ulven
    Shavaughn Ulven 8 months ago

    I’m so very excited as this project keeps growing, excited for the progress that you helped not only generate, but accelerate, and all that it means for our community. ♡ thank you so much!

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Hidradenitis suppurativa (HS) Support Group, a humble special project of HSAWARENESS.ORG ©2017 | This website does not provide medical advice, diagnosis or treatment. Your use of this website constitutes your explicit agreement to our Terms of Use and Privacy Policies.

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