Hidradenitis Suppurativa Support Group Activity

  • niqchu posted an update 4 days, 11 hours ago

    Hoping this is my support home…

  • Ron Bercume posted an update 2 weeks, 3 days ago

    @sonyalacy how are you today?!?!

  • Hello everyone. I’m a brand new member and was just recently diagnosed with HS. I have had “cysts” for over 10 years, however this diagnosis came when my c-section incision didn’t close properly due to the communication between the cysts and incision site. Ironically, they are worse than they have ever been now as well. I do what I can to keep…[Read more]

    • Hello, Teresa please don’t be embarrassed, my friend. HS is not your fault and you are not alone in your struggles. I am sorry I have not responded sooner. The holidays were so busy. By now you have had your first surgery. I hope it has gone well for you and you are healing nicely.
      I know the thoughts of trying new medications can be terrifying…[Read more]

  • Shavaughn Ulven posted an update 7 months ago

    Hey my beautiful warriors, sorry its been so long, I’ve been so busy working on new articles for you all, as well as multiple interviews and videos to debut shortly after.
    I’ve been so excited watching all of the forward momentum we’ve finally achieved. Can’t wait to share it all with you guys.

  • Elimination diet day 10. I would bite your hand off for a cheese sandwich right now!

  • Our Facebook Private group is back up and running: https://www.facebook.com/groups/HSGlobal/

  • Ron Bercume posted an update 1 year ago

    “Patients with Hidradenitis suppurativa (HS) have a greater than two-fold risk of completed suicide”
    I am asked often, yes, fairly often about the statistics around HS and suicide. Until recently and the study found below, to my knowledge there has never been any benchmarked data or major research studies.
    It is with a heavy heart I share this…[Read more]

  • Ron Bercume posted an update 1 year ago

    For those who have taken the time to run the onboarding form, as I have mentioned, I will get back to each and everyone of you very soon. I did not forget about you and could not be more appreciative for you taking the time.

    YOU CAN HELP PROFOUNDLY IMPACT OUR ISOLATED HS PATIENT COMMUNITY GLOBALLY
    You are needed right away to get started on…[Read more]

  • Shavaughn Ulven posted an update 1 year ago

    Hey, long time no talk.
    Well, it sure feels that way to me. You might not have noticed my absence, but I sure did. I’ve been working, and recovering from pneumonia and an ear infection. Besides that, I’ve been applying at every open house possible, trying to find a new place. But I miss you guys so much. I’m still here, I still am working on…[Read more]

  • Ron Bercume posted an update 1 year ago

    We are back up and running, thank you kindly for your patience with me!!

    [Read more]

  • Hello everyone. I have been out for a short time trying to fix problems that are not even mine. Have a Happy Fourth of July. Be Safe. Stay Strong. Keep Fighting. Keep Smiling.

    Manuel

  • Wow…cognitive breakdown! Nap time, I need more more sleep, I think!

  • Oops! That was suppose to go to public activism.

  • “Twenty-two patients with HS were included (16 women), with 10 women in the control group. In the HS group, apocrine glands were present in 11 out of 22 skin biopsies and in the control group in 4 out of 10 biopsies. Expression of ER in the apocrine gland was weak and observed in 2 out of 4 patients in the control group and in none of the HS…[Read more]

  • Missy posted an update 1 year, 11 months ago

    Just wondering if the fb group is private. Can others see it

  • Good evening everyone. I just wanted to welcome our newest members. I see some familiar faces and some new faces. We all have one common goal here to offer each other support and to help spread awareness. Here at hssupport.org you have the ability to create your own group and start your own projects. I have recently created A private working group…[Read more]

  • Working from my phone is proving to be a bit difficult. I will be posting another patient story here at our blog later this week. Thank you everyone who have submitted stories here in our private working group HS Bloggers and Journalists or sent them to my email. I encourage everyone who is comfortable with sharing their story with the world to do…[Read more]

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  • Well I am officially kicking off our Blog this evening. If you would like to contribute patient stories I have created a private working group called HS Bloggers and Journalists where you can share your stories to be published here under your authorship in our blog. I know how difficult it can be sharing your story as I still struggle with it…[Read more]

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Hidradenitis suppurativa (HS) Support Group, a humble special project of HSAWARENESS.ORG ©2018 | This website does not provide medical advice, diagnosis or treatment. Your use of this website constitutes your explicit agreement to our Terms of Use and Privacy Policies.

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