Hidradenitis Suppurativa Support Group Activity

  • Hello everyone. I’m a brand new member and was just recently diagnosed with HS. I have had “cysts” for over 10 years, however this diagnosis came when my c-section incision didn’t close properly due to the communication between the cysts and incision site. Ironically, they are worse than they have ever been now as well. I do what I can to keep…[Read more]

  • Shavaughn Ulven posted an update 2 months ago

    Hey my beautiful warriors, sorry its been so long, I’ve been so busy working on new articles for you all, as well as multiple interviews and videos to debut shortly after.
    I’ve been so excited watching all of the forward momentum we’ve finally achieved. Can’t wait to share it all with you guys.

  • Emma Hopkin posted an update 3 months ago

    Elimination diet day 10. I would bite your hand off for a cheese sandwich right now!

  • Our Facebook Private group is back up and running: https://www.facebook.com/groups/HSGlobal/

  • Ron Bercume posted an update 5 months ago

  • Ron Bercume posted an update 7 months ago

    “Patients with Hidradenitis suppurativa (HS) have a greater than two-fold risk of completed suicide”
    I am asked often, yes, fairly often about the statistics around HS and suicide. Until recently and the study found below, to my knowledge there has never been any benchmarked data or major research studies.
    It is with a heavy heart I share this…[Read more]

  • For those who have taken the time to run the onboarding form, as I have mentioned, I will get back to each and everyone of you very soon. I did not forget about you and could not be more appreciative for you taking the time.

    YOU CAN HELP PROFOUNDLY IMPACT OUR ISOLATED HS PATIENT COMMUNITY GLOBALLY
    You are needed right away to get started on…[Read more]

  • Hey, long time no talk.
    Well, it sure feels that way to me. You might not have noticed my absence, but I sure did. I’ve been working, and recovering from pneumonia and an ear infection. Besides that, I’ve been applying at every open house possible, trying to find a new place. But I miss you guys so much. I’m still here, I still am working on…[Read more]

  • We are back up and running, thank you kindly for your patience with me!!

    [Read more]

  • Hello everyone. I have been out for a short time trying to fix problems that are not even mine. Have a Happy Fourth of July. Be Safe. Stay Strong. Keep Fighting. Keep Smiling.

    Manuel

  • Wow…cognitive breakdown! Nap time, I need more more sleep, I think!

  • Oops! That was suppose to go to public activism.

  • “Twenty-two patients with HS were included (16 women), with 10 women in the control group. In the HS group, apocrine glands were present in 11 out of 22 skin biopsies and in the control group in 4 out of 10 biopsies. Expression of ER in the apocrine gland was weak and observed in 2 out of 4 patients in the control group and in none of the HS…[Read more]

  • Missy posted an update 1 year, 5 months ago

    Just wondering if the fb group is private. Can others see it

  • Good evening everyone. I just wanted to welcome our newest members. I see some familiar faces and some new faces. We all have one common goal here to offer each other support and to help spread awareness. Here at hssupport.org you have the ability to create your own group and start your own projects. I have recently created A private working group…[Read more]

  • Working from my phone is proving to be a bit difficult. I will be posting another patient story here at our blog later this week. Thank you everyone who have submitted stories here in our private working group HS Bloggers and Journalists or sent them to my email. I encourage everyone who is comfortable with sharing their story with the world to do…[Read more]

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  • Well I am officially kicking off our Blog this evening. If you would like to contribute patient stories I have created a private working group called HS Bloggers and Journalists where you can share your stories to be published here under your authorship in our blog. I know how difficult it can be sharing your story as I still struggle with it…[Read more]

  • This week I will be kicking off our Blog publishing one patient story a week as submitted by you the voices of HS. If you would like and have not done so please join us in the private working group I have created HS Bloggers and Journalists to share your stories and I will publish them here in our Blog. Also please include a photo of yourself as…[Read more]

  • Good morning to all members. Keep the fight going for awareness. Take care of yourselves, and never never give up. It a beautiful morning, enjoy.

    Manuel

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Hidradenitis suppurativa (HS) Support Group, a humble special project of HSAWARENESS.ORG ©2017 | This website does not provide medical advice, diagnosis or treatment. Your use of this website constitutes your explicit agreement to our Terms of Use and Privacy Policies.

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