Hidradenitis Suppurativa Support Group Activity

  • “Patients with Hidradenitis suppurativa (HS) have a greater than two-fold risk of completed suicide”
    I am asked often, yes, fairly often about the statistics around HS and suicide. Until recently and the study found below, to my knowledge there has never been any benchmarked data or major research studies.
    It is with a heavy heart I share this…[Read more]

  • Ron Bercume posted an update 1 week, 4 days ago

    For those who have taken the time to run the onboarding form, as I have mentioned, I will get back to each and everyone of you very soon. I did not forget about you and could not be more appreciative for you taking the time.

    YOU CAN HELP PROFOUNDLY IMPACT OUR ISOLATED HS PATIENT COMMUNITY GLOBALLY
    You are needed right away to get started on…[Read more]

  • Hey, long time no talk.
    Well, it sure feels that way to me. You might not have noticed my absence, but I sure did. I’ve been working, and recovering from pneumonia and an ear infection. Besides that, I’ve been applying at every open house possible, trying to find a new place. But I miss you guys so much. I’m still here, I still am working on…[Read more]

  • Ron Bercume posted an update 2 weeks, 1 day ago

    We are back up and running, thank you kindly for your patience with me!!

    [Read more]

  • Hello everyone. I have been out for a short time trying to fix problems that are not even mine. Have a Happy Fourth of July. Be Safe. Stay Strong. Keep Fighting. Keep Smiling.

    Manuel

  • Wow…cognitive breakdown! Nap time, I need more more sleep, I think!

  • Oops! That was suppose to go to public activism.

  • Ron Bercume posted an update 11 months ago

    “Twenty-two patients with HS were included (16 women), with 10 women in the control group. In the HS group, apocrine glands were present in 11 out of 22 skin biopsies and in the control group in 4 out of 10 biopsies. Expression of ER in the apocrine gland was weak and observed in 2 out of 4 patients in the control group and in none of the HS…[Read more]

  • Warm welcomes to all of our new members!

  • Missy posted an update 11 months ago

    Just wondering if the fb group is private. Can others see it

  • My doctor recently tried me on an antidepressant called Elavil to help treat my fibromyalgia. I haven’t had very good success with antidepressants in the past prescribed to treat anxiety and this prescription proved to be no different. I actually had to stop this med not only because it was making me excessively tired but mentally creating a lot…[Read more]

    • I have tried many, but I really try to take the medication on a low dose for at least 8 weeks, because it can be a medicine that takes some time to regulate the systems. But found many are in effective in the long run, especially once the dosages go up! Some are worse than others, in side effects, but I am really sensitive to them! I’m on nothing…[Read more]

    • Be careful some can create severe side affects, not sure what in an antidepressant would help with Fibro??????????

  • Fawn Griswold posted an update 11 months ago

    Good evening everyone. I just wanted to welcome our newest members. I see some familiar faces and some new faces. We all have one common goal here to offer each other support and to help spread awareness. Here at hssupport.org you have the ability to create your own group and start your own projects. I have recently created A private working group…[Read more]

  • Fawn Griswold posted an update 11 months ago

    Working from my phone is proving to be a bit difficult. I will be posting another patient story here at our blog later this week. Thank you everyone who have submitted stories here in our private working group HS Bloggers and Journalists or sent them to my email. I encourage everyone who is comfortable with sharing their story with the world to do…[Read more]

  • Ron Bercume posted an update 11 months ago

    [Read more]

  • Coconut Oil is a must have in my opinion! It can be used directly on the skin. I particularly use it head to toe almost daily after I shower or bath. You can also combine other essential oils with it. Some like tree tea oil. But I\’m going to try with oregano oil next. I need to pick up another jar. Organic cold pressed, unrefined is best!

  • I would like to join the pcos group since I and my daughter have pcos.. I haven\’t been accepted to join..

  • I have so many bad reactions to medications, I\’m down to not much of a choice. I\’m going to try Zoloft but it will not help my pain. I can no longer take gabapentin, lirica, or Cymbalta. And a few other antidepressants. What things have others tried as far as medications?

    • I tried them all and was finally left with no med help. Doc told I just need to learn to live with it. I usually take life day by day but some days are hour to hour depending on how bad I feel.

    • I’m in the same boat…antidepressants mentally make me worse so I don’t even know if they would be beneficial for my fibro. I can’t seem to get that far. However my anxiety medication which is strictly for anxiety works wonders for me.

  • Well I am officially kicking off our Blog this evening. If you would like to contribute patient stories I have created a private working group called HS Bloggers and Journalists where you can share your stories to be published here under your authorship in our blog. I know how difficult it can be sharing your story as I still struggle with it…[Read more]

  • How many of you practice hiding your Hidradenitis Suppurativa from lovers or significant others? How many of you are still doing it?

    • I’m still hiding it…its very difficult to even think about telling someone I could potentially date

    • I’m in a 19+ year relationship and never hid it from him, but I have to his family up until recently and even quite a few of my own family members! I have been open with some friends and others have had no clue until recently as well! Both sides 😉

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Hidradenitis suppurativa (HS) Support Group, a humble special project of HSAWARENESS.ORG ©2017 | This website does not provide medical advice, diagnosis or treatment. Your use of this website constitutes your explicit agreement to our Terms of Use and Privacy Policies.

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